Recordings and written testimonial from members of the Brittle Bone Society. Includes both audio and video recordings of interviews carried out on Zoom. Topics of discussion include involvement with the Society, childhood and growing up with Osteogenesis Imperfecta, working life.
Oral History
This material is held atUniversity of Dundee Archive Services
- Reference
- GB 254 MS 327/12
- Dates of Creation
- 2010-2022
- Name of Creator
- Physical Description
- Approx. 4GB
Scope and Content
Administrative / Biographical History
The Brittle Bone Society (BBS) was founded in Dundee in 1968 by Margaret Grant and is the only UK-wide charity organisation set up to provide support to people affected by the bone condition, Osteogenesis Imperfecta (OI). The Society works closely with specialist medical units and other professionals from across the United Kingdom, plays a crucial role in promoting research into the condition and offers practical support, advice and encouragement to patients and their relatives. The Society continues to operate from its Dundee headquarters and currently has a membership in the region of 1000.
Arrangement
Chronologically within series
Access Information
Open for consultation subject to preservation requirements. Access must also conform to the restrictions of the Data Protection Act (2018), General Data Protection Regulation (GDPR, 2018) and any other relevant legislation or restrictions. Clinical information is closed for 100 years.
Note
The Brittle Bone Society (BBS) was founded in Dundee in 1968 by Margaret Grant and is the only UK-wide charity organisation set up to provide support to people affected by the bone condition, Osteogenesis Imperfecta (OI). The Society works closely with specialist medical units and other professionals from across the United Kingdom, plays a crucial role in promoting research into the condition and offers practical support, advice and encouragement to patients and their relatives. The Society continues to operate from its Dundee headquarters and currently has a membership in the region of 1000.
Physical Characteristics and/or Technical Requirements
Digital recordings
Conditions Governing Use
Reproduction is available subject to preservation requirements. Charges may be made for this service, and copyright and other restrictions may apply; please check with the Duty Archivist.
Appraisal Information
No recordings destroyed
Accruals
Expected
Additional Information
Published